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A Library of Links and Resources

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Time to Say Good-Bye to OPCA? by Alyshia (July 2005)

This a great brochure about OPCA and Genetic Testing:
Ataxia Brochure

Psychiatric and Cognitive Complications of Diseases Affecteing the Cerebellum by Dr.Russell L.Margolia, M.D. (Winter 2003 NAF "Generations" Magazine)

My OPCA by Ed (July 2005)

Detailed Information Pages on OPCA (Organized by type)
Scroll down to: Spinocerebellar Ataxia Type 1, 2, 3,6 ,7, 8, 10

Tremor Action Network (TAN)
To spread awareness of essential tremor by advocating for a cure through research.

About the Cerebellum
For many of the 150,000 Americans with ataxia, a disease that harms movement, this mysterious region of the brain is a big problem.

Spinocerebellar Ataxia type 3 (SCA3) also known as Machado-Joseph Disease

Learn about Spasticity
Spasticity is defined as an involuntary, velocity-dependent, increased resistance to stretch. It is a symptom of OPCA.

The Neurology Webforums Choose: Specific Neurological Conditions and go to Cerebellar Ataxia
An excellent forum for people to post questions, concerns and stories. This is open to all and is very active.

"A Balancing Act--Living with Spinal Cerebellar Ataxia" by Patricia Birdsong Hamilton.
This site gives you a listing of the chapters of her book. Go here to buy it.

Canadian Movement Disorder Group

Specific Information about SCA-10 and Dentatorubral-pallidoluysian atrophy Also has a good basic description and chart as well.

Their blerb on OPCA which they call "Parkinsonism plus balance problems"

Movement Disorders Clinic in London, Ontario Canada

NORD
The National Organization for Rare Disorders. Lists the disorder Subdivisions. Scroll down to: ataxias.

Dana BrainWeb "The Dana Guide to Brain Health"

National Ataxia Foundation
The National Ataxia Foundation is a nonprofit organization established in 1957 with the primary mission of encouraging and supporting research into Hereditary Ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination.

emedicine: Neurology: OPCA
This site even talks about the history of OPCA (how it was discovered etc.)

Great Research Articles from Ataxia UK

Learn more about Sid Gilman M.D.

The Sarah Matheson Trust for Multiple System Atrophy
MSA is often associated with OPCA. This UK site offers info on MSA.

Cerebellar Degenerations
This site talks about all the different types of OPCA and draws a chart to explain.

Hereditary Ataxia Overview
Another site that breaks down the different types of OPCA

Cerebellar And Spinocerebellar Disorders
A brief synopsis of cerebellar disorders

NINDS Ataxias and Cerebellar/Spinocerebellar Degeneration Information Page

NINDS Olivopontocerebellar Atrophy Information Page

If you have a LINK you'd like to share
Please post it on the Discussion Forum!



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